The A Revised And Updated Directory For The Internet Age

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to hereditary spastic paraplegia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on hereditary spastic paraplegia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Hereditary Spastic Paraplegia: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Hereditary Spastic Paraplegia; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Hereditary Spastic Paraplegia; Chapter 5. Books on Hereditary Spastic Paraplegia; Chapter 6. Multimedia on Hereditary Spastic Paraplegia; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Rights and Insurance; ONLINE GLOSSARIES; HEREDITARY SPASTIC PARAPLEGIA GLOSSARY; INDEX. Related topics include: Familial Spastic Paraplegia, Spastic Spinal Familial Paralysis, Strumpell Disease, Strumpell-Lorrain Familial Spasmodic Paraplegia, Strumpell-Lorraine Syndrome,Strumpell's Familial Paraplegia.