The A Revised And Updated Directory For The Internet Age

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to hallervorden-spatz disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on hallervorden-spatz disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Hallervorden-Spatz Disease: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Hallervorden-Spatz Disease; Chapter 4. Books on Hallervorden-Spatz Disease; Chapter 5. Multimedia on Hallervorden-Spatz Disease; Chapter 6. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Rights and Insurance; ONLINE GLOSSARIES; HALLERVORDEN-SPATZ DISEASE GLOSSARY; INDEX. Related topics include: Hallervorden-Spatz Syndrome, late infantile neuroaxonal dystrophy, Neuroaxonal Dystrophy, Late Infantile, Pigmentary Degeneration of Globus Pallidus, Substantia Nigra, Red Nucleus, pigmentary pallidal degeneration syndrome, Progressive PallidDegeneration Syndrome, progressive pallidal degeneration syndrome.